Update on Lymphoma
Race Director
Joined: Dec 2004
Posts: 14,358
Likes: 1
From: Medford NJ
Deb,
So happy to hear! My wife will be super happy to hear as well. I'm sure you'll hear from her via FB - just sent her a text.
'Tis the season for miracles...
If you need anything please let us know.
Charlie
So happy to hear! My wife will be super happy to hear as well. I'm sure you'll hear from her via FB - just sent her a text.
'Tis the season for miracles...
If you need anything please let us know.
Charlie
Last edited by cjlaw73; Dec 16, 2010 at 12:18 PM.
Le Mans Master
Joined: Dec 2000
Posts: 8,744
Likes: 2
From: The King of Bling
St. Jude Donor '10
Deb i am into my 13th treatment and have 26 more to go. I have started to feel the side affects of radiation it is not pleasant when you have any of these treatments. I am up at 5am out the door at 6:30 off to the hospital back home and off to work. My radiation is like a second job but as you know it is a must if we want to beat this dreaded disease. I sometimes sit alone and get very depressed but then i will get an email from Carmen or Bob that will make me smile and they always have positive wishes when i talk to them. I am sorry you have no family in the NY area if you ever need a ear to listen to you i will gladly send you my cell phone number. I have found it is very comforting to talk to someone who has or is going through this illness. I will hopefully be down at the Docs after the holidays. I am having my calipers powder coated and Carmen will be taking care of that for me.I will let you know when i pick up the car maybe i will see you then. Stay strong
I also got periocariditus sp? from it. Hopefully you will fair a lot better than me, they did say that I got every side effect and that I was not the norm. That said, it was all worth it and is all a distant memory now. I know, you were probably saying to yourself for me to get to the point. Well that is it, it will soon be a distant memory and you will be glad it is over and are cancer free. They put me on anti depressants despite me thinking I did not need or want them but I have to say they were god sent. IF you are not already on them ask your doctor for a script, they REALLY help with your mental outlook while you are going on treatments. I remember sitting in the HUP Radiation ward every day and it was very depressing seeing the other patients, especially when they would bring the babies in from CHOP for the treatments. It would bring tears to my eyes. Well, I am not going to tell you any stories because I do not want to depress you any more. I will tell you they gave me a 5% 5 year survival rate since I was stage 3b lung cancer and I have been cancer free for 12 years now. Like I told Deb, somebody has to be in that percentage of survivors and it might as well be us. They are making great strides in the cancer treatment arena and it is no longer a death sentence. Deb, I am jealous, I would so love to be going to Florida to escape this cold weather. Hopefully some day. You can get some REALLY great deals down there right now on real estate since the market down there is so bad, much worst than up here. You should make out good in that department. Have a great time and enjoy the weather. I hope your mother feels better.
Last edited by agentf1; Dec 16, 2010 at 12:32 PM.
Instructor
Joined: Aug 2010
Posts: 103
Likes: 0
gnmontagnino, hang in there, I did the radiation/chemo concurrently route for my lung cancer and have to say as easy as the radiation treatments were (you just lay there) once the effects kick in they are the hardest to deal with. My esphogus was so enflamed it hurt to eat jello, it was too solid, ice cream and pudding were much easier but still tough to get down. They even gave me my pain medication oxycodone in liquid form (what I would give for a bottle of that now. j/k) I also got periocariditus sp? from it. Hopefully you will fair a lot better than me, they did say that I got every side effect and that I was not the norm. That said, it was all worth it and is all a distant memory now. I know, you were probably saying to yourself for me to get to the point. Well that is it, it will soon be a distant memory and you will be glad it is over and are cancer free. They put me on anti depressants despite me thinking I did not need or want them but I have to say they were god sent. IF you are not already on them ask your doctor for a script, they REALLY help with your mental outlook while you are going on treatments. I remember sitting in the HUP Radiation ward every day and it was very depressing seeing the other patients, especially when they would bring the babies in from CHOP for the treatments. It would bring tears to my eyes. Well, I am not going to tell you any stories because I do not want to depress you any more. I will tell you they gave me a 5% 5 year survival rate since I was stage 3b lung cancer and I have been cancer free for 12 years now. Like I told Deb, somebody has to be in that percentage of survivors and it might as well be us. They are making great strides in the cancer treatment arena and it is no longer a death sentence.
Deb, I am jealous, I would so love to be going to Florida to escape this cold weather. Hopefully some day. You can get some REALLY great deals down there right now on real estate since the market down there is so bad, much worst than up here. You should make out good in that department. Have a great time and enjoy the weather. I hope your mother feels better.
I also got periocariditus sp? from it. Hopefully you will fair a lot better than me, they did say that I got every side effect and that I was not the norm. That said, it was all worth it and is all a distant memory now. I know, you were probably saying to yourself for me to get to the point. Well that is it, it will soon be a distant memory and you will be glad it is over and are cancer free. They put me on anti depressants despite me thinking I did not need or want them but I have to say they were god sent. IF you are not already on them ask your doctor for a script, they REALLY help with your mental outlook while you are going on treatments. I remember sitting in the HUP Radiation ward every day and it was very depressing seeing the other patients, especially when they would bring the babies in from CHOP for the treatments. It would bring tears to my eyes. Well, I am not going to tell you any stories because I do not want to depress you any more. I will tell you they gave me a 5% 5 year survival rate since I was stage 3b lung cancer and I have been cancer free for 12 years now. Like I told Deb, somebody has to be in that percentage of survivors and it might as well be us. They are making great strides in the cancer treatment arena and it is no longer a death sentence. Deb, I am jealous, I would so love to be going to Florida to escape this cold weather. Hopefully some day. You can get some REALLY great deals down there right now on real estate since the market down there is so bad, much worst than up here. You should make out good in that department. Have a great time and enjoy the weather. I hope your mother feels better.
That tells me you are in a good frame of mind stay strong!!!!!! We WILL kick this cancers ***
Drifting
Joined: May 2006
Posts: 1,794
Likes: 1
From: Wildwood Crest New Jersey
Hope for the best for you! I was dianosed with Chronic Lymphomic Leukemia in April of this year. I know how you feel..the worry, tears, fears, and Hope. If ya need a voice or a ear feel free to PM me or email me at ed77katr@verizon.net anytime. I have all the faith in the world for a cure,and plan on making it to a old folks home someday in the far future. I am sure to Perhaps run into you there. We can talk old days about Corvettes there...LOL I plan on dying of senility or alcoholism at a advanced age
Good Luck Ed
Good Luck Ed
Le Mans Master
Joined: Jan 2002
Posts: 7,275
Likes: 19
From: Camden County NJ
Just seen your update today Deb I don't make it to the Forum as much as I used to. Glad to hear things are looking better I can't begin to imagine what you are going through.....Keep fighting!! Wishing you and your son a Happy Holiday
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Melting Slicks
Joined: Feb 2006
Posts: 3,400
Likes: 3
From: Sarasota Florida
Deb, I haven't been logging on to CF much lately but you have been in my thoughts. I am soooo happy that your scan came out clean!! I will keep you in my prayers in the meantime have a great Christmas and if you need anything just holler.
I will keep you in my prayers in the meantime have a great Christmas and if you need anything just holler.
Thread Starter
Race Director
Joined: Dec 2005
Posts: 12,078
Likes: 2
From: Palm Coast, FL
St. Jude Donor '08-'09-'10-'11-'12
Its a fight every day, but I sure am trying my hardest
gnmontagnino, hang in there, I did the radiation/chemo concurrently route for my lung cancer and have to say as easy as the radiation treatments were (you just lay there) once the effects kick in they are the hardest to deal with. My esphogus was so enflamed it hurt to eat jello, it was too solid, ice cream and pudding were much easier but still tough to get down. They even gave me my pain medication oxycodone in liquid form (what I would give for a bottle of that now. j/k) I also got periocariditus sp? from it. Hopefully you will fair a lot better than me, they did say that I got every side effect and that I was not the norm. That said, it was all worth it and is all a distant memory now. I know, you were probably saying to yourself for me to get to the point. Well that is it, it will soon be a distant memory and you will be glad it is over and are cancer free. They put me on anti depressants despite me thinking I did not need or want them but I have to say they were god sent. IF you are not already on them ask your doctor for a script, they REALLY help with your mental outlook while you are going on treatments. I remember sitting in the HUP Radiation ward every day and it was very depressing seeing the other patients, especially when they would bring the babies in from CHOP for the treatments. It would bring tears to my eyes. Well, I am not going to tell you any stories because I do not want to depress you any more. I will tell you they gave me a 5% 5 year survival rate since I was stage 3b lung cancer and I have been cancer free for 12 years now. Like I told Deb, somebody has to be in that percentage of survivors and it might as well be us. They are making great strides in the cancer treatment arena and it is no longer a death sentence.
Deb, I am jealous, I would so love to be going to Florida to escape this cold weather. Hopefully some day. You can get some REALLY great deals down there right now on real estate since the market down there is so bad, much worst than up here. You should make out good in that department. Have a great time and enjoy the weather. I hope your mother feels better.
I also got periocariditus sp? from it. Hopefully you will fair a lot better than me, they did say that I got every side effect and that I was not the norm. That said, it was all worth it and is all a distant memory now. I know, you were probably saying to yourself for me to get to the point. Well that is it, it will soon be a distant memory and you will be glad it is over and are cancer free. They put me on anti depressants despite me thinking I did not need or want them but I have to say they were god sent. IF you are not already on them ask your doctor for a script, they REALLY help with your mental outlook while you are going on treatments. I remember sitting in the HUP Radiation ward every day and it was very depressing seeing the other patients, especially when they would bring the babies in from CHOP for the treatments. It would bring tears to my eyes. Well, I am not going to tell you any stories because I do not want to depress you any more. I will tell you they gave me a 5% 5 year survival rate since I was stage 3b lung cancer and I have been cancer free for 12 years now. Like I told Deb, somebody has to be in that percentage of survivors and it might as well be us. They are making great strides in the cancer treatment arena and it is no longer a death sentence. Deb, I am jealous, I would so love to be going to Florida to escape this cold weather. Hopefully some day. You can get some REALLY great deals down there right now on real estate since the market down there is so bad, much worst than up here. You should make out good in that department. Have a great time and enjoy the weather. I hope your mother feels better.
Hope for the best for you! I was dianosed with Chronic Lymphomic Leukemia in April of this year. I know how you feel..the worry, tears, fears, and Hope. If ya need a voice or a ear feel free to PM me or email me at ed77katr@verizon.net anytime. I have all the faith in the world for a cure,and plan on making it to a old folks home someday in the far future. I am sure to Perhaps run into you there. We can talk old days about Corvettes there...LOL I plan on dying of senility or alcoholism at a advanced age Good Luck Ed
Good Luck Ed
Looking forward to seeing you and Alicia soon.....hope she is feeling great!!!
Merry Christmas and Happy New Year everyone - thank you all so much for remembering me. Thank you to Danny for the constant words of encouragement......
and mostly........thank you Barry....for everything (Merry Christmas Mr. President
) 
Thread Starter
Race Director
Joined: Dec 2005
Posts: 12,078
Likes: 2
From: Palm Coast, FL
St. Jude Donor '08-'09-'10-'11-'12
Trying to keep smiling until then!
Retired Admin
Joined: Apr 2002
Posts: 46,405
Likes: 34
Founder St. Jude Fundraiser
Deal with the 27th, on the 27th.
You know that we're here for you now, and throughout the entire process
Stay strong!
Le Mans Master
Joined: Jul 2006
Posts: 5,894
Likes: 1
From: Farmingdale NY
St. Jude Donor '06
Le Mans Master
Joined: Jun 2005
Posts: 9,948
Likes: 0
From: Hudson Valley Region, NY The "sonoma/napa" of the Northeast~~~~~ Are we there yet?
St. Jude Donor '08
positive thoughts... they work wonders
and hey... put this all behind you in 2011 already would ya!!!
Le Mans Master
Joined: Aug 2004
Posts: 9,420
Likes: 8
From: Southern New Jersey, The wet part at the bottom
St. Jude Donor '08-'09-'10
Great to hear from you Sunday! I'm sure with all the folks here that we should be able to scrounge up a few stem cells here and there (I know we can't help you in this matter, but you KNOW we would if we could). I'm sure the stem cells are more of a catch net for the future, and I hope and pray that you'll have no need for them, but look what you have endured over the last 5 months and defied the percentages by beating this horror of a medical adventure (this is what the Tequila is for!) Hope to see you soon! 
Hope to see you soon!
Thread Starter
Race Director
Joined: Dec 2005
Posts: 12,078
Likes: 2
From: Palm Coast, FL
St. Jude Donor '08-'09-'10-'11-'12
Great to hear from you Sunday! I'm sure with all the folks here that we should be able to scrounge up a few stem cells here and there (I know we can't help you in this matter, but you KNOW we would if we could). I'm sure the stem cells are more of a catch net for the future, and I hope and pray that you'll have no need for them, but look what you have endured over the last 5 months and defied the percentages by beating this horror of a medical adventure (this is what the Tequila is for!) Hope to see you soon!
Hope to see you soon! I have it on pretty good authority that the stem cell transplant won't be too bad - a fairly quick procedure so I'm not scared......just anxious, like "lets get it over with already" ya know?
Tell RA to send me the weather report and I'll be on standby! Will try to get Barry in on this too if I can.....otherwise we'll just have to do it a second time
