Glad it went well for you. Always in our preyers sweetie

 

Will do Deb

Glad to hear that the port is removed, and that Barry was there to help you through the process

Hang in there Deb, there is a light at the end of the tunnel

Keep the faith, and stay strong.

You're always in my thoughts and prayers

Please let us know how things go at Sloan.

 

Thank you everyone!

So I went back to Sloan yesterday for my follow up. I've been having concerns about the new medication because, to me, it hasn't seemed to have any effect whatsoever.

Well, the doc agreed - I could see by the look on his face that it wasn't what he was hoping for. Even though it was the lowest dose possible, he was expecting that it would have at least slowed the progression. No such luck.

He told me to triple the dose (6 Targretin/450mg instead of just 2/150mg). He said we'll give it just one more month and if there is no change, he wants to switch to methotrexate. It would require another PET scan first to make sure it hasn't gone systemic again. This is my biggest concern - I've told just about every doctor that time is not something I have a lot of when it comes to slowing this down. With four years under my belt with this, I kind of know what to expect. This is one of those times that I truly hate being right. I'm not overly thrilled with waiting another month either......I just get a bad feeling knowing how aggressive this is.

I feel like I've taken three steps forward and four steps back at this point. Trying very hard to stay positive and keep a good attitude, but I'm a little upset and having a very hard time trusting in any doctor.

I have another blood test in two weeks, then another two weeks after that on the morning of my next visit to Sloan on April 18. I could really use a miracle right about now.......

 

All you can do is stay positive and give it your best shot, I know it's not easy but you have stay determined.

 

And theres one out there for you!!!

 

Pushing the loud pedal on our prayers for you Deb and begging God and your doctors to help in this stage of your treatment.

 

Deb,

I know sometimes it seems like everything is against you, but that is the time when you need the most faith. All our prayers and thoughts go to you and your doctors that they, along with your inner strength, fight this thing and beat it once and for all.

Please keep a positive approach to each day even though it may be difficult. Miracles do happen....take a look at Alex

The inner spirit you and Danny exhibit through your internal battles is strength to us all.

From Karin and I, as well as all the Vette Doctors team, pray for your doctors to find the right combination and an end to all the pain and anquish. As always, miss you and hope to see your smiling face at the shop real soon.

Ed M

 

Thanks Ed!! I was at the Doc's two weeks in a row, I kept asking for you. I'm sure I'll be there next Friday.

 

Hey Deb, your miracle is out there. Keep the faith and be strong, its got to be hard, but I believe you have the strength. I believe in you.

 

We ALL do Deb! Next to the woman I married I can't think of any stronger woman than Debbi.

 

I'm praying for a full recovery Debbie.

 

Big John!!!! Thank you so much!! How you doing buddy?

 

Doing good. Would be better if I didn't gain all this unwanted weight but why complain. You just keep a positive attiude

 

Debbi, when you are ready to throw your hands up and yell, "What next?", and it sometimes seems like your treatment and tests go on and on, just remember, your little piece of miracle is right around the corner. You just can't see it yet because of the curves in the road. And that nice highway feels so good after the bumpy road you have traveled (OK, now think like a vette). Life is precious and you have touched so many people through your struggles. You are a winner and this disease has gotten its *** kicked already and is in for another good old fashioned butt whipping. Many hugs and good wishes are being sent up to you) from your South Jersey Fan Club (which includes kitties and humans).

 

Thanks RA......it has gotten a bit more frustrating the past few weeks and I've learned not to ask "what next" because it seems like when I do....fate is all to happy to answer.

I'm going back to Sloan a week from today and hope to come home with some better news. Some of these damn things are starting to hurt and I don't dare leave the house with anything less than long sleeves and long pants.......which is really going to make for a crappy summer if something doesn't start working.

Keep me posted about turtle day!!

xoxoxo

 

Nobody needs to see your skinny-*** legs anyway.

(Oh boy! I know EXACTLY what the next "smiley face" will be. Hurry up and post it because I'm cringing and squeezing my legs together already!)

 

 

Oohhhhhh ... every time I see that I really cringe and my eyes go . And, I know that I can always count on you to come through.

Now wise-*** ... here's something that will bring back some memories:

 

Junkies wear long sleeves and long pants in the summer to cover there tracks

 

Suntans are overrated. What? Do you want to look like the Great Pumpkin, I mean John Boehner, chief Republican in the House?
Hey, I was a surfer, and lifeguard on Atlantic Beach on LI, when I was a kid. I was always tan. Now I try to look pale. It's healthier.